6.30.12...well son...you are a couple of days over the 9 month mark and "paddling" something fierce! You have been eating like there's no tomorrow and since I'm determined to get that feeding tube out of your body, I started giving you your meds orally as well! Today was the first day, but you had no major issues with it. I crush them up and put them in applesauce. Next step...swallowing pills! I have no doubt you'll get there soon! Your body is still struggling to keep up with your mind, but of this too I'm sure, soon they will be as one just as they once were! Your pain is still a MAJOR problem, but Dr. Patterson has some other med else up his sleeve that we will start next week! Come on depakote!! Jill has given me some articare gel (organic pain reliever) to rub on you pain filled arm and leg...seems to help...a little. Anyway, we are paddling forward with help from Hilary and Julia...bless their hearts! Noho ikaika...stay strong, paddle hard, dig deep! Your strength never ceases to amaze me! Aloha nui loa, pea...I love you very much, bear! ♥ Mama bear ♥

6.30.12...well son...you are a couple of days over the 9 month mark and "paddling" something fierce! You have been eating like there's no tomorrow and since I'm determined to get that feeding tube out of your body, I started giving you your meds orally as well! Today was the first day, but you had no major issues with it. I crush them up and put them in applesauce. Next step...swallowing pills! I have no doubt you'll get there soon! Your body is still struggling to keep up with your mind, but of this too I'm sure, soon they will be as one just as they once were! Your pain is still a MAJOR problem, but Dr. Patterson has some other med else up his sleeve that we will start next week! Come on depakote!! Jill has given me some articare gel (organic pain reliever) to rub on you pain filled arm and leg...seems to help...a little. Anyway, we are paddling forward with help from Hilary and Julia...bless their hearts! Noho ikaika...stay strong, paddle hard, dig deep! Your strength never ceases to amaze me! Aloha nui loa, pea...I love you very much, bear! ♥ Mama bear ♥

6.19.12...Hey, Bear! Doing GREAT! You are definetly moving into a new phase! It makes things a little tricky around here...You are trying to get up and do things yourself! Your brain says yes you can, but the body is not quite there yet! I turned my back for maybe two minutes, (which until recently was okay) when I came back in the room you were out of the living room chair! Knees on the ground, your trunk sprawled over the stool...pretty much stuck, but laughing. I asked you what you were trying to do and you said "I have to go to the bathroom". I'm really glad it was just a warning shot to me and that you didn't get hurt! Thank goodness Markie was here...It was pretty tough getting you up! It is really 24/7 now!! Really great progress, but just hoping your body catches up soon!! Off to therapy tomorrow, sweetie. Lets hope your frustration doesn't get the best of you! My heart is yours, Cole!! I love you... ♥ MB ♥

6.12.12...Hey sweetheart! You are moving right along! Cognatively you are blossoming. And physically,well...have to really keep an eye on you as you are trying to get out of the living room chair by yourself. The other day when we returned home from therapy, I was getting your wheelchair out of the back of the car, by the time I got to your door, you had the seatbelt off,door open and legs were almost out the door! You are taking some steps while holding on to parallel bars, sitting up like it's no big deal, taking steps back to the chair/bed when being transferred, leaning forward and standing without to much help from me, holding your own weight and controlling it while lowering yourself down to a chair, getting shirt and shorts (almost completely) on, getting your socks on (with a little assistance), we played solataire, and blink (card games), your are eating TV eggs, enchiladas, burgers, a little doughnut, not big amounts, but Rome wasn't built in a day, right? You see the pain management Doc on Thursday. Lets pray he finds some way to relieve your constant pain in your arms, legs and head. So frustrating and heartbreaking not to be able to help you! Your strength and courage continue to inspire me daily and I couldn't be prouder to call you my son! Paddle on Bear, paddle hard! I love you... ♥ mama bear ♥

Forbear
Life changes without any care
Leaving us nothing to spare
But from new beginnings we’ll share
Outside of your customary lair
Be Aware
There’s a world spinning out there
For Bear
As you fight for your life to be well
Emerging from some kind of hell
As if breaking a spell
Be Well
There’s a world spinning out there
 For Bear
The loves in your life are about
Demanding removal of doubt
On the path where you’re reaching out
Like a cub you’ll be dancing about
Be Stout
There’s a world spinning out there
For Bear
The strength of your parent’s resolve
Will ensure that these trouble s dissolve
That your hold on life will strongly evolve
A remedy is destined to solve
Be Sure
There’s a world spinning out there
For Bear
The riddle that life has provided
That otherwise fate has decided
Will be solved by the love that’s resided
In the hearts of those undivided
Be Praised
There’s a world spinning out there
For Bear

 By Peter Watts